Highlights from this year’s Cystic Fibrosis Conference
Highlights from this year’s CF Conference included the publication of the 2016 Registry Data Report, which showed continued gains in survival for people with CF. According to the report, the median predicted age of survival for people with CF who are born in 2016 is 47 years. This news was met with great excitement and some questions. Some of these questions are addressed in a blog post by Dr. Bruce Marshall.
Available also on the CFF.org Web Page are highlights from the 2016 Registry data.
Dr. Sadeghi Recognized at the CF Foundation Greater New York Chapter Gala
November 17, 2016
On November 17, the Greater New York Chapter of the Cystic Fibrosis Foundation held its “Breath of Life” gala in New York City. During this event our own Dr. Hossein Sadeghi was recognized for his work in support of several innovative efforts to bring treatment and care to CF patients around the world.
During his acceptance of the award, Dr. Sadeghi referenced several of the patients which the CF Bridge of Hope has sponsored for treatment and receiving medicine in the United States, as well as many of his benefactors and supporters, including Senator Blumenthal and the Wilton Interfaith organization.
A visit with Reza
February 19, 2016
by Constance Tate
Two of Wi-ACT (Wilton Interfaith Action Committee) members are a husband-and-wife team from Iran who have lived in Wilton for the past 20 years with their own now-grown children. Hossein and Golnar Sadeghi are both doctors and considered to be expert leaders in the field of pediatric cystic fibrosis. Hossein works primarily at the Columbia-Presbyterian Hospital and Columbia Medical School where he is on the faculty in New York City, and also with his wife at his pediatric pulmonary clinic in Stamford. (…)
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Team helps provide much-needed cystic fibrosis treatment
January 21, 2016
by Kendra Baker
With the help of many, including the Wilton Interfaith Action Committee (Wi-ACT), Iranian 17-year-old Reza AliAkbari is getting treatment for cystic fibrosis, a life-threatening, chronic genetic disorder that damages the lungs and digestive system. (…)
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