Events Listing

CYSTIC FIBROSIS FUNDRAINSING DRIVE

Come out and support The Cystic Fibrosis Bridge of Hope.

DECEMBER 1, 2018 at 11:30 AM

This fundraiser will be a 50 minute JoyRide led by the super motivating and energetic, Selina Santos!

Please arrive at JoyRide Wilton by 11 a.m. This will allow you time to get checked in and set up properly on the bike. It is recommended that you bring a water bottle, wear comfortable work-out clothes and sneakers. Book your bike now -Minimum donation is $40 per bike (paid in cash or check) the day of the event. Checks may be written out to: Cystic Fibrosis Project, Inc.

We look forward to riding with you. If you have any questions, please feel free to call or email the studio at: 203.762.6122 or infowilton@joyridestudio.com

Upcoming Events:    
November 28, 2018 6:00PM-8:00PM Family Education Night The Cystic Fibrosis Center and the Pediatric Pulmonary Division of Columbia University

3959 Broadway, 1st Floor, Tower 103 New York, NY 10032

For information and to RSVP with number attending, please contact: Monica Lopez, CF Coordinator (212) 305-8184 or ml2948@cumc.columbia.edu
This evening is organized specifically for families of children with Cystic Fibrosis. Dr. Sadeghi and his associates will share with families information about some of the most current treatment therapies as well as ways parents can help their children manage their CF symptoms.  We will also be providing an introduction to the work of the CF Bridge of Hope. To follow infection control guidelines, this night is for parents and caregivers without CF only. Only one person with CF is allowed to attend an indoor gathering.
Past Events:    
May 9, 2018 Family Education Night Tully Health Center, Brace Auditorium 32 Strawberry Hill Court Stamford, CT 06902 For information and to RSVP (including number attending), please contact: Rosanne Casey, RN (203) 276-5981 or RCasey@stamhealth.org Highlights will include the latest news and updates, along with topics of interest. We will also have many representatives from all the major drug companies, nutrition, and medical products & equipment who will be here to answer your questions and give you all the latest information and product demonstration. Download Event Flier (pdf format) To follow infection control guidelines, this night is for parents and caregivers without CF only.
November 29, 2017 Family Education Night Columbia University New York, NYFor information, please contact:  (212) 305-8184 or info@cfprojectinc.org This evening is organized specifically for families of children with Cystic Fibrosis. Dr. Sadeghi and his associates will share with families information about some of the most current treatment therapies as well as ways parents can help their children manage their CF symptoms.  We will also be providing an introduction to the work of the CF Bridge of Hope.
May 21, 2017 CF Great Strides - New Canaan, CT For information and to sign up, please go to the: CF Great Strides event link Great Strides provides a great opportunity for people within the community to get involved in a great cause. Participants can form walk teams at their workplace, through their clubs and organizations, or with friends and family. Walk day is a fun, family-oriented event with a healthy 5k walk, children's activities, food, and festivities that participants look forward to year after year.
April 27, 2017 Family Education Night Tully Health Center 32 Strawberry Hill Court Stamford, CT 06902 For information, please contact:  (914) 226-2856 or info@cfprojectinc.org  This evening is organized specifically for families of children with Cystic Fibrosis. Dr. Sadeghi and his associates will share with families information about some of the most current treatment therapies as well as ways parents can help their children manage their CF symptoms.  We will also be providing an introduction to the work of the CF Bridge of Hope.
 June 2017 (date and time TBA)  "Leave no Person with CF Behind" An Informational WebinarDetails to be published here shortly For information, please contact:  (914) 226-2856 or info@cfprojectinc.org The CF Bridge of Hope will share current developments in the fight to cure CF, as well as the most current techniques for managing symptoms of CF. All who wish to become educated on these important developments, or would like to assist the CF Bridge of Hope in our work to fight this disease are encouraged to attend this informative webinar.
October 27-29, 2016 North American Cystic Fibrosis Conference Orange County Convention Center Orlando, FL Find event details, including program agenda, registration information, sponsors and exhibitors at: https://www.nacfconference.org/ The NACFC serves as a collaborative forum to advance research for the treatment and cure of CF, and is an ideal opportunity to receive state-of-the-art continuing medical education and learn about the latest products and services in CF care. The educational elements of the meeting program are targeted to physicians, nurses, research scientists, respiratory therapists, physical therapists, nutritionists, social workers, and pharmacists to share the latest research and advances in CF. The meeting is held over three days with more than 60 concurrent sessions.
November 10, 2016 6:00 - 7:30 PM Family Education Night Columbia University 3955 Broadway CHONY Tower 103 New York City, NY Please contact (212) 305-5122 for information For those interested in ongoing efforts to find a cure for CF and current treatment therapies, we will be sharing developments and insights from the North American Cystic Fibrosis conference, as well and providing an introduction to the work of the CF Bridge of Hope. 
November 17. 2016 6:00 - 7:30 PM Cystic Fibrosis Foundation Greater NY Chapter "Breath of Life Gala"Cipriani 42nd Street New York, NYPlease contact (212) 305-5122 for information The Breath of Life Gala is the annual signature fundraiser for the Cystic Fibrosis Foundation's Greater New York Chapter. The magnificence of this gala returns for its 12th year on Thursday, November 17th at Cipriani 42nd Street. Dr. Sadeghi of the CF Bridge of Hope will be one of the honored and recognized medical professionals.